So Caloway Has Hip Dysplasia

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You may have noticed in some of the pictures we’ve posted of Caloway that he has been in a brace. We haven’t spoken to many people about this beyond our immediate family and closest of friends for a number of reasons but felt it was time to go ahead and share what has been going on with our little boy.

We’re only sharing this because so many of you have asked recently … because you care, you love us and you adore our baby. Thank you so much for that. It’s one of the great joys of my life to see so many people drawn to him and feel so much love for our little man.

So here goes …

On the day of his birth on Jan. 29, 2013, the hospital pediatrician came in to examine Cal … only to mention that he noticed “clicking” in his hips. In the next day we learned that he had “hip dysplasia” and the doctors put him in a brace called a “Pavlik Harness.”

After the doctor left, we distinctly remember sitting on the hospital bed together, holding each other and crying our eyes out as we thought of our newborn son.

All of you parents can relate I’m sure. No matter how small or minor … it is our child.

Evidentally hip dysplasia is fairly common in infants, particularly girls and babies who were breech (which we discovered Cal had been for some time, but learned about only two weeks before he was born). Essentially his femur and hip socket did not form correctly … and his hips easily come out of the socket.

Normally mild forms are treated with the Pavlik or correct themselves. But Caloway has a severe form of hip dysplasia and has been treated by the OU Children’s Hospital pediatric orthopedic clinic since the week after his birth.

Under their expert direction we tried 4 different (and custom) braces over the course of the last 3 months, with checkups every week to check his progress.

Early on, the word “surgery” was dropped and of course rocked our world, although we were optimistic it would be corrected with the braces. In early April though the doctors tried the last brace and then suggested the next course of action would be surgery.

That’s when we decided to get a second opinion and perspetive to ensure we were doing the best and right thing for our little precious baby. So our little family flew to San Diego to meet with a highly rated pediatric orthopedic surgeon a couple of weeks ago. It was a very productive trip and confirmed everything we had done and that surgery would be the next, best step in correcting his condition.

So here we are … I type this on Wednesday and in two days, on Friday, our little boy will be going into surgery, or rather what we’re calling a procedure.

Surgery though is a tough, tough word. Especially as we look on our amazing little boy and he smiles back at us.

Although I’m SO thankful it is not something worse and this should be correctable and a blip on the radar of a great, long, healthy and joyful life for our son … it sucks.

We’ve been assured numerous times that it’ll likely be harder on us than him. But we would still gladly trade places with him.

We have not taken this lightly. We’ve asked questions upon questions, verified and re-verified. We haven’t rushed into this, but rather evaluated our options and sought to do what is best for our son first and foremost. Lindsey has been involved with a couple of online parent groups who have kids with severe hip dysplasia like Caloway’s … it’s been reassuring, helpful and comforting to know we’re not alone.

As a loving, protective father, I’ve stared into the eyes of every doctor and nurse and made sure they knew we’re trusting our entire world to them.

My biggest concern is/was anthesia, since the procedure (hopefully just “closed reduction”) will simply mean setting the bones in the sockets, then casting him. We’ve been walked through the process and although I would never choose this for him, we’re confident in the doctors and anesthesiologists and nurses who only deal with children.

If they think an “open reduction” is warranted, they will make a small incision, assess how bones are fitting together, clean out the socket if needed and put him in the body cast.

The body cast will go from his ankles to his chest and he’ll be in it for about 3 months. After that, he’ll return to a removable brace for a time and then we are home free.

We’re already planning on asking a couple of our talented designers who love Caloway to paint something unique and special on his cast.

The procedure will go pretty fast (two hours or less) … then we’ll be in the hospital overnight. Then home, checkups, recasting at 6 weeks and more checkups.

We’ll keep you informed … in the meantime, thank you for your love and support for Caloway and us.

Comments

  1. So NOW the San Diego trip makes sense!! He will be a-ok! I just know it! I will keep you kids in my thoughts! Love you!

  2. Lindsey and Cory, Uncle Randy and I will be thinking and praying for your little man, Caloway. I have been keeping Randy posted by your Facebook page. When looking at Caloway’s photos, seeing him smiling, it always brings a smile to our face. It is easy to see that he is one happy little guy and loved so much. Thank you for keeping us informed. Love, Aunt Debra & Uncle Randy

  3. I can’t even imagine what you guys are going through. But I hope you find comfort that, to all of us looking in, Cal is in the best care imaginable from his two incredible parents. Just know that we’re all here for you, cheering you guys on, meal-wheelin’ and cast-sketching anything you need. Much love!

  4. I won’t lie. I had tears streaming down my face when I read this, and still do as I type. Mainly because my heart aches for Caloway, but also because I cannot help but feel overwhelming empathy for the three of you; regardless if I’ve never even met 2/3 of your sweet family. Nonetheless, I have faith. Fervent prayer, attentive ears, a faithful heart and endless trust are what I wish upon you. Thank you for sharing your lives with us. Caloway will remain in my thoughts & prayers, as will the two of you and the doctors and nurses. Take care of eachother <3.

  5. We will PRAY for ALL WHO WILL BE ENVOLVED WITH YOUR PRECIOUS LITTLE ONES MEDICAL JOURNEY, YOU ARE LOVED& ALREADY HAVE SUCH A BEAUTIFUL TESTIMONY TO SHARE!!!! GOD BLESS YOU & YOUR LITTLE FAMILY!!!!!! WITH THE LOVE OF JESUS, Polly

  6. BTW, I forgot to mention, that that photo of Caloway is SO precious! His bursting smiling face just makes me happy :).

    • Thanks Dawn – the thing I’m most looking forward to is his first smile at us … I anticipate he’ll have all the doctors and nurses and staff in love with him because of it. 🙂

  7. Totally sucks, but, sounds like you all have done, and will be doing, the right things. My family’s thoughts are with you. Those two hours during the procedure will be the toughest for Mom and Dad…this too will pass and a long and beautiful life ahead for all three.

  8. Those wise little eyes of his know he’s going to be fine. And there will be so many blessings in this journey. Hang in there, Mom and Dad. He’s a winner and sooooo beloved.

  9. We love you guys. That awesome little kid couldn’t ask for two better people to love and care for him than you all. iThemes is one awesome family, and we will fight for each other. You and Lindsey know that every member of your team is with you and would do anything for you guys. Tomorrow we’ll be praying for you, and after that we’ll do whatever else you guys need.

  10. Hey Cory,
    You guys are going to do great. It rough to watch your kids go though something like this but he’ll be in good hands. Kristie and I will pray for Caloway and the doctors… and your nerves too. You and Lindsay are excellent parents. Nobody makes better decisions for your children than you do.

  11. I really can’t express in words how inspiring you, Lindsey, and Caloway are to me. I can’t imagine what you guys are going through, but know without a doubt that you have so many friends and family rallied behind you. If there is anything that I can do for you all, please don’t hesitate to ask.

  12. It tears me up that you and Lindsey are going through this. I don’t have any children, so I can only imagine the pain you both are going through. I know that it is hard though.

    I grew up with many friends with disabilities and congential disorders; I myself was born with club feet and had to wear corrective shoes. In reflecting upon this, I think it’s clear that what you are born with doesn’t make who you are. The parents that raise you, the family that watches over you, cares for you, loves you, guides you, and nurtures you are what matters. That is what shapes a person, gives them meaning, gives them purpose, and gives them a sense of self worth and value.

    Both you and Lindsey are excellent parents that deeply care for Caloway and clearly will stop at nothing to ensure that he has the best opportunities in life. While I don’t know all of your extended family, I know enough of them to know that they deeply care about taking care of their own.

    Based on this, I think that it’s clear that Caloway has an awesome start on life and will have amazing potential to do whatever it is that he desires. In other words, Caloway is quite blessed.

    I hope for the very best outcome with regards to Caloway’s procedure tomorrow. If there is anything that I can do to help, please let me know.

  13. Wow to think I was holding little Caloway last weekend while the two you ate lunch I feel even more honored now. My thoughts and prayers are with you both, and praying for a speedy/healthy recovery!

    Please let me know if you need anything at all.

    Rachellle

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